This blog is a running commentary of my life, thoughts and revelations that I don’t want to forget. I’ve found that as our kids get older and busier, if I don’t write down my thoughts, I forget them.
It’s also my hope that perhaps one thing I say is an encouragement to someone – perhaps to simply feel that there is another person in this world who wrestle with the same things they do.
I love my Desta girl. She has grown so much in the past year. It’s been a joy to see her develop habits that help her. It’s not been an easy road. They have been a lot of potholes and bumps to navigate around and over. Simple tasks are still a struggle more mornings than not. Go to responses filled with anger and loud frustration happen often. I cannot recall a time in my life that I’ve been emotionally and physically exhausted as I’ve been this year. Brain trauma healing is not for the faint of heart!
However, I’ve been working hard to see her – not the behavior but the real her, the little girl who delights in building houses with Legos for hours. This little girl who can go through 50 sheets of paper with drawings and writing – she’s the one I am looking at daily.
For the past few months, I’ve noticed Desta get her backpack in order and take it with her. I honestly didn’t think too much of it – I was happy she had a task to do while we were all preparing to leave. Then it dawned me while we were in Texas! Desta had figured out how to manage herself.
This little girl, who for so many years has struggled with self regulation and hangry actions has figured out how to care for herself. She fills her backpack with toys to play with, drawing materials, and snacks. She knows EXACTLY what she needs, always including some sort of small stuffed animal.
You guys, this is HUGE. Desta has learned what she needs and she does it. For those who have regulated brain trauma free kids, this behavior is a given right? It doesn’t seem like such a big deal. But for my Desta, this is a monumental step toward healing and independence. She has realized how to cope in this world.
I am hanging onto this one today, celebrating and so very thankful that the hours and hours of therapy, of focused attention at home, of good doctors and medication – all this combined is helping heal my sweet daughter’s heart and brain.
Healing happens. It takes a lot of time! We brought our Desta girl home almost 8 years ago! I am so thankful that for the living example I see every day of my daughter working hard to overcome obstacles. She has taught me so much about determination, healing and hope.